Define "Remission"

Anonymous
February 3, 2010 at 11:45 am

Kitti,

Reading through this thread, my first thought was, “What is remission”? Might be good to offer more of a definition.

Since I’m still fighting for a diagnosis, I can’t even say for sure that I have CIDP…I’ve had one neurologist suggest it, and two others “poo-poo” the idea.

But, in the 9 months since whatever I have has gotten a lot worse, I can say this: I’ve had periods…a week or two…when I feel a little better. Not as fatigued, not in as much pain, etc. Not all my symptoms disappeared, but I did feel a little like my old self. 😮 Unfortunately, those periods are usually followed by being slammed back down to the mat; don’t know if that’s because when I feel better I overdo it (that’s my thought at the moment) or if it has little to do with anything I do, but that seems to be the trend.

I you’re defining remission as a complete return to your “pre-CIDP” days, or a complete lack of any symptoms, I doubt you’ll find anyone who has had that, based on what I’ve read here over the past six months. As I said in a previous post; “You can never go back…all you can do is move forward”. In fact, I saw a great quote a few days ago, and even posted it on my Facebook page…

[I][B]”Nobody can go back and start a new beginning, but anyone can start today and make a new ending.”[/B][/I] 😉

Elmo