Death from GBS…

I think all of the answers above are very good. When I was in inpatient rehab at Mayo a very sweet gentleman with GBS was also there. He was in really bad shape & I wondered why he wasn’t still just in a hospital bed. One morning I asked where he was & was told he had quit breathing the night before & died. Wasn’t he being monitored for his breathing?

I also felt the hospitals I was in seemed to be breeding grounds for germs. I was so lucky to get out when I did & get my IVIG in my own home. But I think that if I were to die tomorrow (5 1/2 years out) my obituary would still probably say that I died from complications from GBS, even if It were something totally unrelated.