Dawn Kevies Mom

Anonymous
April 3, 2010 at 4:04 pm

Thanks for the reply. I don’t have any other issues right now other than the pain. The Vicodin does help the pain, but I don’t want to get addicted to it. I did try Lyrica, but could not take it. I did try Cymbalta and it worked great, the first day I tried it, it took the pain away. Unfortunately the side effects of excessive sweating and extreme dry mouth did not go away. I am seriously thinking about trying it again, I just worry if that is not a good thing with the excessive sweating and dry mouth. I was on it for about three months and the side effects did not decrease, but it felt good to not have pain, but just irritating to get out of the shower and feel like I had to take another one. It is interesting about the sugars. I was dx with diabetes about 5 months ago and I have been on Metformin. My neuro thought with the decrease in my surgars that it would help with the pain, but no luck. My neuro also seems stumped with my pain. All the other anti-depressents make me too sleepy. I really do wonder about the food additives and food allergies out there that people are unaware of. I am reading a book titled “Eat This, Not That”, that is very interesting. A good movie to see is “Food Inc.”.

Clare in Michigan

Dawn Kevies Mom

Anonymous
February 4, 2009 at 7:56 pm

I forgot to tell you the counselor told me with the economy being the way it is many people with degrees are pursuing the medical field. She said the day before she interviewed me she had a school principle apply. CMA in the next two years will be a very high demand jobs with all the baby boomers retiring and getting older. I feel like I have another good 15 or 20 years left in me before I retire. Sometimes I have moments of depression. In class we were discussing medical abbr. and they came across DNR. My husband had a DNR order at the hospital and I was thinking about that morning. I had a breakdown in class and lost it. The teacher knows it had only been 2 months since my husband had passed. She excused me to go to the bathroom. When I came back she told me every once in a while I will have moments like that thinking about little things. Mattaeray thank you so much for the encouraging words. As far as being strong I truly believe my husband is with me and helping me stay strong like he would want me to be.

dawn kevies mom

Anonymous
August 28, 2008 at 1:27 am

[QUOTE=Dawn Kevies mom]Joan,
If they do a repeat ncv/emg, I am sure they will duplicate the original test by usung the same nerves and measurements, but play dumb and say something like so do you guys test the same nerves to have an accurate comparrison? Is it possible that we could test the same nerve. This way you are not insulting them by demanding and doubting them and you are still letting them know you might know a little yourself. I don’t know what they could be looking for w/standard bone exrays. I assumew/mri, they would be looking for lessions. I forgot, did you have a nerve biopsy in Tenn? Did it show onion bulbing
( demylienation process)? What about the athena test for charcot marie tooth? In any event, I am sure you are in good hands and you will leave with an answer and a plan. I am going to have faith in it!!!
Dawn Kevies mom[/QUOTE]

Dawn: He said it is not demylienation. Thanks for the info as I was scrambling trying to find something.We will be leaving Friday for our sons and then go back to tn. on sat.

Dawn Kevies Mom

Anonymous
January 19, 2008 at 1:07 am

I’m chiming in again. Today I received a package from Dawn with lots of helpful info. that will help us talk to my husband’s neurologist. Even though Kevin, was having a bad weekend, Dawn took the time to put the package of articles in the mail to us. You can’t even imagine how it feels to get that kind of support. CIDP can be overwhelming and dealing with the doctors even more overwhelming–so being informed and prepared when you talk with them is critical. Thank you Dawn! Make sure you call on us if you need anything, and I will be rushing to your rescue–that is a promise.
Laurel

Dawn Kevies Mom

Anonymous
January 11, 2008 at 1:37 am

I would like to say that I am very impressed with her compassion and offers to help me with some of the issues I am trying to sort out for my husband with CIDP. She is obviously a very special person. This forum is wonderful. I have often felt overwhelmed trying to sort out things as my husband is pretty sick right now (all the side effects from his adventure with Imuran has caused a flare up). And it is comforting to come here and find answers and support. But special thanks to Dawn.
Laurel