Daughter on the mend – sort of

February 9, 2008 at 5:44 pm

It’s been a while since I’ve had a chance to write about Carolyn. Like you said, 1 step forward and 2 steps back. She is still in rehab and they say it will be about 3 weeks and then sub-acute rehab. She’s not in constant pain any longer and her headaches went away for a while but now they’re back. Her eyes still won’t close and her speech is not really improved in the last week. She’s been having stomach pain although she is moving her bowels. She does have more movement in her arms and 2 days ago she moved her left leg! No feelings in the toes yet but she senses touching her ankles and lower legs.

She’s had double vision for about 2 weeks and we’ve asked many times for an opthamologist to take a look at her. I could understand if the eye muscles are affected like everything else. Yesterday a neurological opthamologist said it may be Miller-Fisher Syndrome which is another can of worms:confused: . They want to do an MRI (to check for a tumor in the brain) but my daughter and her husband are opposed to it. They feel ithe double vision is caused by the GBS and dont’ want to go that route. I see no reason not to just be sure.

The past few days have been constant highs and lows for us and the whole thing is wearing on everyone. The children see Carolyn almost every day. Since she has relatively little pain and some movement she can interact with them and that’s so much better for all.

Anyway, that’s all for now. I don’t know what dosage of neurontin she’s up to now, Gene, but I’ll check.