November 1, 2006 at 10:59 am

I was given the high dose cytoxan (cyclophosphamide) for nine months with the intention of wiping out my immune system & then allowing it to reboot. I was infused 1140 mg 3 times in five days at the Uof M as an inpatient, then 2 more infusions when I got home at the same dosage, then followed up with 1800 mg once a month for 8 more months at my local oncology center. Once my immune system was at 0 for awhile, chemo was ended.
I have never had another treament for CIDP since then, which was in September of 2003. My CIDP was arrested & then I had quite a bit of nerves heal afterwards for a few years. I am not perfect, as I still need AFOs for dropped foot & have poor balance, but at least I can walk again & have most of the use of my hands back. The best thing is waking up every day & knowing that I will be the same, no relapses…