It sounds like you have tried everything. If you google Dr. Lewis, you will eventually find a little video/story on the site of the hospital where he works. I was so impressed by this as the man in the story had been everywhere trying to figure out what was wrong with him. He finally went to Dr. Richard Lewis in MI and he took a long time and looked over his records and diagnosed him with something and he is doing great now and golfs all the time. I am jealous that your son will be able to see Dr. Lewis as he only sees adults. We live in Shelby, a small town in north central Ohio. There is also a pediatric neurologist in MI named Dr. Acsadi and he is doing extensive research on CIDP and other neuropathys. Pray that God leads you to the answer. He is the true physician.