Are you actually in the hospital right now? I am so excited for you. My doctors won’t refer me. They say because I am still improving. But it is so slow and it has been 2 1/2 years now. Just can’t wait to hear all about it.

I wish you the very best with the sct process! I got my sct Aug 23rd and can feel the healing already. I don’t feel like my body is under attack any longer and I can walk longer without screaming pain. Before sct, by the time I made it from the handicap parking spot to the entrance of the store and the electric cart, I was in so much pain, I could hardly shop. Now I can walk a couple of miles and bike 10 miles!! I know this next year will involve pain as the mylin sheath repairs and the nerves regenerate, but I’ve been in pain for 3 years, so at least this will be healing pain.

Good luck!!!

Did your doctor recommend the SCT or did you apply on your own???? I am considering SCT because the IVIG is not helping and I have had a steady decline, but the doctor wants to keep on with it. I am at a crucial age where I may not meet the criteria if I wait much longer. That is why I feel like I am in limbo.

Good luck with your evaluation.

have been contemplating this myself—but both my own Dr and Dr Dyck recommended giving the ivig a more aggressive approach and longer try…..so thats what im doing now. But–i feel as though im wasting precious time that i could be out having fun and enjoying life,if i could just get rid of this crappy disease and get on with life Seems like sct is doing just that for people:) best of luck with your appointment

Congratulations, Mark, to your body on its achievements! And it has only been One year. You will see even more improvements in the next year. Those poor nerves take a long time to repair…but they will!
I attended a wholistic expo last month in Allentown and had a sclerologist look at the lines on the whites of my eyes. It is another diagnostic tool for the body to give us a heads up…like iridology and reflexology. He doubted what it showed and said, “You don’t have a problem with motor skills, do you???” He was surprised when I smiled and said that I do, but they are not that noticeable. I explained that my body was recuperating from GBS of 5 years ago. It doesn’t show up in my walking, but going down steps I take one at a time. Just to be careful. I don’t feel as grounded as I used to…think I could fall over easier if I were pushed.
Mark, I applaud your positive celebratory attitude…your body is repairing and needs to be recognized for its wonderful ability. While we work, sleep, watch tv – the body is busy doing its best to keep us healthy. Amazing…think of how far you have come.

Carolyn

Congratulations Robert! I hope to be following behind you shortly!

Take care.

Jennifer

Robert – so happy you are in the program. I look forward to hearing great things about your progress (and hope to see you in Chicago).

Im so happy for you sct sis! I know you ll do great and will be one of the best officers out there!

I cant wait until I announce the same . soon I hope.

Good luck.!

WOW !! Sharon Congratulations ! Im so happy for you .
Im glad it was an easy process for you, it took me 6 months and several denials.
I just got home Monday from Chicago. Im so excited for you!!!

If you have any questions, let me know.

Rossana

I am so pleased to hear you are getting in to Johns Hopkins. I am sorry for your rapid decline. I hope your treatment there is quick and you have a rapid recovery.
Good luck!
Sue

Congratulations, on all your hard work!!!

Well guys, you finally beat us by inches. Jim, it must have been those secrets up your sleeve. Drinks are on me. Congratulations guys. Next time, we’ll beat them Canada. You can change the formula a little in the gas mixture.

Congratulations on your little bundle of hope and love to help get the New Year going strong.
WithHope

Cara,
I am new to this forum. I have been an RN for 20 yrs. and worked in hosp. for 34 yrs. Nursing is a great profession. I loved what I was doing when I was striken with GBS in April 2007. Did it take the 2.5 yrs. for you to fully recover? It has been 16 mo. for me & I still use a rollator to walk, don’t drive & have lots of pain. Again, congratulations and hang in there nursing school can be tough. Good Luck
Cathy C.:)

i cant think of a better way to honour you mother than to care for your patients and their families knowing what they are going through.
Good luck for Graduation day!

Congratulations on living through the last year with grace and strength pf spirit. We all hope that this next year will be easier and that the IV IGG works well each time!
WithHope for cure of these diseases.

Amy,
So happy to hear about your daughter’s recovery and your sharing of the experience through the new book. So hard to hear of children going through GBS– thankful every day it was me rather than one of my little ones. Many happy cartwheels ahead!

that’s a happy ending story, considering that some of other people here are still battling with insurance comp or trying to find the right treatment for themselves. Well, you still have some more work and recovery to do but I am so happy for you and your family. Keep up the good work and stay around this site , some of us may want to know more details about your experience, would be nice to have a ”fresher” opinion about this nasty syndrome. whishing you all the best.

[FONT=”Comic Sans MS”][SIZE=”7″][/SIZE][/FONT]
[SIZE=”6″][FONT=”Comic Sans MS”][COLOR=”Red”]Hooray for Helga! 🙂 ! 🙂 ! You made it home! 🙂 ! 🙂 ![/COLOR][/FONT][/SIZE]

It is great to hear happy stories. It keeps me hopeful about a good recovery for my daughter.
All the best to you!

congratulations continue for more improvement

This sounds like “good news”, Liz… At least YOU are in the driver’s seat now rather than a disease that is forcing you to do this and that… 🙂 Have you made any decisions on IVIG..???

Aimee

Dear Emily, congratulations on your recovery! I don’t know you, but each time I read these postings, I realize how everyone is a little family. My ten year old son has aidp or cidp we are still working on the Dx. I really did not want to be a part of this family but I am so grateful to get encouragement, help and info from all of these kind people! Keeep up the hard work and good luck to you! Dawn

Congratulations to you. I have CIDP, and a severe exacerbation in Nov. 05 left me completely unable to drive for six months. I now drive with hand controls. You never realize the loss of independence until you can’t drive. I hated depending on people for getting around, especially as a 44 year-old man. I’m sure you felt the same anguish. I felt shame, actually. I literally had tears in my eyes the first time I took my car out with the hand controls – FREEDOM IS GREAT!

What a fantastic idea. Congrats Donna..

We shall appreciate if you post some selective photos of the celebration.

Please convey my best wishes and regards to all family members.