confused too

July 27, 2006 at 6:23 pm

Thanks for the note Jerimy. Yeah, I guess I’m sort of confused too– my doctor friends (none neurologists) all thought IVIG would be the course of action. Is it not normal to be discharged if the symptoms are limited to fingers, toes, legs, face? What percentage of patients with these symptoms typically receive IVIG?

Just received a call from the neurologist and he’s going to check in again in the morning and likely start outpatient IVIG.

I’ve done a lot of things in my life that would be considered scary (e.g., hanging off the side of mountains) but never been scared like this. Think it’s not knowing how far GBS will progress. Also a feeling of helplessness that I’m not accustomed to. Thanks.