Clinical Trial

September 13, 2007 at 5:50 pm

In April of 2005 you mentioned being in a clinical trial by taking 4-aminopyridine, how are you doing now? You said your sensations was returning? How long were you on it?

Hope you get your meds figured out.


Clinical trial…

March 16, 2007 at 1:45 am

This is actually very similar to the protocol that I went through back in 2003. I had 9 months of heavy doses of cytoxan (cyclopohsphamide) infusions, which did arrest my CIDP. I haven’t needed a treatment of any kind since Sept of 2003. But I did not have any stem cells harvested, just the cytoxan infusions. After about 3 months, I could tell that the CIDP had quit progressing, & it took about 6-9 months to start see noticeable improvements. I am still left with reisduals, but at least now I can walk again & I got most of the use of my hands back…