Clinical Trial

Anonymous
September 13, 2007 at 5:50 pm

In April of 2005 you mentioned being in a clinical trial by taking 4-aminopyridine, how are you doing now? You said your sensations was returning? How long were you on it?

Hope you get your meds figured out.

Igmoo

Clinical trial…

Anonymous
March 16, 2007 at 1:45 am

This is actually very similar to the protocol that I went through back in 2003. I had 9 months of heavy doses of cytoxan (cyclopohsphamide) infusions, which did arrest my CIDP. I haven’t needed a treatment of any kind since Sept of 2003. But I did not have any stem cells harvested, just the cytoxan infusions. After about 3 months, I could tell that the CIDP had quit progressing, & it took about 6-9 months to start see noticeable improvements. I am still left with reisduals, but at least now I can walk again & I got most of the use of my hands back…