April 8, 2008 at 11:52 am


I have the MADSAM variant of CIDP as well. It can also be called Lewis-Sumner Syndrome. The hallmark of this form of CIDP is asymetric weakness. I was an avid runner and expert-level snow skier, but have been unable to do such things for years. You are early in the game and hopefully a treatment protocol will work for you and return you to activity.

Regarding IVIG infusions, I have always received IVIG in a hospital outpatient treatment center. I am able to run the infusion very fast, and the whole process only takes 2 hours. I would not want to do the infusion at home, as I try to really keep the medical stuff out of the house. So, every one has their own viewpoint on this.

Best of luck to you.