CIDP – Help with Questions

November 16, 2009 at 9:29 pm

Kyle, Glad to hear you got the second opinon, your on the way to a better life. That being said, this disorder acts differently with everyone. You have to read, listen and then make your own decisions. I have responded well with PlasmaExchange, had adverse reactions with IVIG, relapsed with Cellcept, and am currently undergoing chemo! Wow, I just posted 15 years of CIDP treatments in 2 sentences. Seriously, I was diagnosed when my kids were 1 month, 2 and 4 years old, and have had 15 above average years from what I can read. Sure, I feel cheated from time to time, that’s what the bigest challange can be at times, especially when your weak and tired. You have to manage your energy and draw the line at times. Using Canadian crutches or braces goes a long way towards conservation of your energy.

E mail me if you desire. Your not alone..:o