CIDP Delay Treatment?

October 11, 2011 at 7:00 pm

I have to agree with the advice above and throw in the somewhat common caveat- “Follow your Doctor’s advice.”

If you have not been to a Center of Excellence or a neuromuscular specialist, get thee hence.

Do not delay. The damage, while possibly slow moving and unnoticeable, could be progressive, spreading to multiple areas and be irrepairable.

The direct answer to your question? I went 30+ years with no diagnosis and therefore, no treatment.

I do have irrepairable damage.

The determination of how long to go between your GBS IVIG and, do I have this right, it’s been 4 years since your last IVIG? and “NEW” IVIG should be done in consultation with a specialist.