CIDP and time…..

October 11, 2008 at 2:09 am

Hey guys and gals

Like ConnerzMom, I was “diagnosed” at 37ish. I had an episode of acute renal failure where the pain did not resolve. I ended up with hypersensitive nerves in my back. I had my son in 1997 – had an epidural and suffered because of the hypersensitivity. I must say that it was bliss not feeling anything because of the epidural.

I didn’t start having problems around numbness, etc. until 2000ish. My feet were dead when I got out of bed. My hands, similar.

I am now 10 years down the track. Things have deteriorated but I can still walk. My hands are pretty useless. But, you adapt and learn how to work around the issues. But the issues are almost totally sensory; I agree that it would be very helpful to have some sort of diagnostic test to help out.

I learned alot from a pain therapist. She was really keen about making sure that you don’t worry about what will happen ni the future; because if you do, you may get to the future and have wasted that time for living! She also helps me look at ways I behave so that I don’t take advantage of being “sick”.

But – I am assuming that I will have this for the rest of my life. I will take what comes and live with it.