September 5, 2008 at 11:23 pm

I have had the same procedure someone mentioned.Lith? It is just putting you into this tub of water and then you are put to sleep while they break it up .
They zapped me once before putting me to sleep and kind of jumped just because I did not get any kind of warning and it just shocked me. So they said good bye and I was out. No after effects at all. Depending on how many times and where it is you may have some bruising on the back. They did put a stint in me earlier for a few days but that was just to move the stone somewhat and keep things open in case it passed. I was not put to sleep for that and it was uncomfortable. So just get it done asap and it will be over. I do not think most drs do this procedure but we had a trip planned in just another week and I did not need to go thru the pain in anothr state. Good luck


September 5, 2008 at 10:08 pm

[QUOTE=angel2ndclass22699]Linda, You are in my prayers! I know how you are feeling right now, being as I just found out last night that I have a large mass in my abdomen. Try to take things one step at a time and all will workout ok. Sending positive thoughts your way.[/QUOTE]

For you also Cheryl. You just wonder why. I am sorry for your bad news also. It is time for some good don’t you think. It is so hard to hear these kind of reports but hopefully both you and Lind H are in good hands. Let us know when you have time just how you are.



August 25, 2008 at 8:53 am

Glad to hear you are feeling better! Am also glad you are getting some feeling back. This sounds like good news! Get well soon with cyber hugs heading you way.


August 2, 2008 at 7:31 pm

please tell me more about the side effects you experienced– are you not doing any prednisone now?



February 13, 2008 at 9:25 am

actually pain is not always present in fibro except when drs press on trigger points to chesk for this. My sister and mother also have this and as I said earlier the news from Oxford Rheumatology has seen patients that have both and have a small percentage of people that have benefited from IVIG on both ends of their diseases. Lyrica, Cymbalta, Prednisone, are just a few of the similar meds that both diseases have. Burning, numbing, tingling in extremities especially the the feet and legs are similar to the types of pain some people have with CIDP. They believed for a long time that it was muscle related (fibro) but are now looking at the point that it is affecting nerves also and mostly periferal not central. Remember not long ago people with fibro were considered to be mentally ill not physically and they are finding more info everyday that proves that there are several things involved with Fibro. And many of these are similar to CIDP I know that because I have both and I have been able to see some of these similarties and also the differences and sometimes I cannot tell which is trying to push to the forefront. I have read up on several web sites and there are many different claims about fibro. But I go by what I see and feel myself, through my family who has it and the 4 support groups that I speak at for fibro that have several people with different symptoms but all have fibro and we get new research all the time from head researchers about this and they have found in alot of test subjects that there is nerve involvement not necessarily all muscle and that they are working on trying some new treatments that other autoimmune diseases use and some have helped and some have not. Ongoing research for all autoimmune diseases will eventually hopefully help us all but until then there is trial and error. I am hoping that when and if I get my IVIG that I will be in the small percentage that helps both of my problems and not just one except I have found that I am not that lucky. Also you were lucky feeling better during pregnancy because my sister was alot worse with hers but felt better after about two weeks after delivery. Some of the women in my groups have said both ways they have felt great and they have felt awful so again everyone is different in how these diseases present and what works and what does not.


March 11, 2007 at 11:45 am

Cheryl will be going with her last race – California picks:

1. Dale Earnhardt Jr. 8
2. Jimmie Johnson 48
3. Matt Kenseth 17
4. Kasey Kahne 9
5. Tony Stewart 20
6. Jeff Burton 31
7. Kyle Busch 5
8. Kurt Busch 2
9. Carl Edwards 99
10. Clint Bowyer 07
11. David Gilliland 38
12. Denny Hamlin 11
13. Jeff Gordon 24
14. David Stremme 40
15. Kevin Harvick 29


May 25, 2006 at 6:36 pm

And what recipe would you like me to use. Butter or Margarine? Tomatoe or Onion? Pickles? Tomatoe Soup?

I might have found a new career! I served a awesome breakfast if you want to wait till noon! LOL