To all of you who have responded back to me, thank you…thank you…thank you!!!
Recap: My husband was flown out 9/21 after an obvious relapse from the GBS. Thanks to all of you for insisting getting him back to the hospital and the use of an ambulance. After much discussion by his neurologist, nephrologist, etc. it was decided that when he received the 5 treatments of IVIG in July…but then his kidneys shut down between the 4th and 5th treatments and he had 3 days of kidney dialysis…that much of the treatment medicine was washed out…and that was why he relapsed so quickly the end of August. That makes sense. Anyways…he was totally immobile when he left our home on 9/21. After 2 weeks in the hospital and 6 treatments of plasmapheresis, he is now…moving arms, legs, turning over, feeding himself, sitting up fairly good, and his smile is no longer crooked (he also had Miller Fisher Variant on his right side). He is doing great. Can do leg and arm lifts. It is wonderful! He (and me) are so happy. His fine motor skills are still a bit jerky, but that is AOK!! Friday he was transferred to a rehab facility where he will be for about 2 weeks. This week they will start weight bearing…and then walking with a walker/parallel bars when he is ready for that. We are so excited. Hope this works! I came home yesterday (Tucson is 3 hours away), I’d been there the whole two weeks and will go back on Friday. Think this caregiver needed a bit of a rest. Please keep posting and encouraging us. I printed out the posts I’d received from all of you and read them to Richard. You guys are all awesome!! Please keep Richard in your prayers. Thanks so much! Marcia