cellcept vs immuran

June 9, 2006 at 10:23 pm

Hi Emily,

I think I wrote to you under another title a few days ago…

I sure hope you are feeling better…
I’ve been reading this website a lot lately and I’ve been in shock.

I’m just now starting to go into remission after four years of non-stop plasma pheresis and 2000 mgs of Cellcept a day. I’ve been going to the gym five times a week to gain strength. At my worse I couldn’t even hold my head up in the hospital or open my eyes. Breathing was a chore etc. Now I can take care of my family, walk up stairs, but I still get very sharp pains in my lungs.

Anyway, I just wanted you to know Cellcept has been a very good autoimmune suppresant for me. I’m down to one or two a day. it’s tough on your stomach though. Plasma pheresis every two weeks also helped me a lot more than i.v.ig.

I don’t know if we’ll be stuck with this thing for the rest of our lives or not…I sure hope not, but if so, let’s pray they come up with better ways to treat it. I’m sure you’re like me…I want to help make a difference for someone else.

Take Care.