Cellcept info.

[QUOTE=espersen4]I’m not on the cellcept now. I went off of it at the beginning of June becaue my husband and I are trying for baby #2. I have been on it twice the first time for a year, symptom free, side effect free and I didn’t have to have IVIG. 500 mg 2/day The 2nd time I was on it for almost 2 1/2 years. Still no side effects but I did relapse about every 7-8 weeks and had to have IVIG also. In between relapses I was symptom free. I was on 750 mg 2/day

The first time, I had monthly blood tests. The 2nd time I ws not as good as I should have been but did have intermitent blood tests. I never had any significant illness either time I was on cellcept. I did get the flu or a cold here and there but I always recovered quickly.

The first time, I weaned off prednisone onto cellcept and had an IVIG during that process so it is hard to say exaclty how long it took to take affect. The 2nd time, I was a few months post pardum and my symptoms had come back with a vengeance. I had started the cellcept and still had to get IVIG at increasing frequency for about 2 months. Then I did a round of IVIG every day for 5 days, then once a week for a month, then every other week, etc. Until I was able to go 7-8 weeks in between. So it is a little hard to say how long it took for the cellcept to work the 2nd time too. Sorry for the “non-answer” answer but that is the best I can do.

For me, Cellcept has been a lifesaver. I was able to go a whole year basically feeling “normal” again. And then the 2nd time, it enabled me to take care of my baby. Without it, I was relapsiing every 1 1/2 weeks and was getting so weak that I could not hold her, pick her up out of her crib, or even dress her. That broke my heart.

I hope this helps. Please ask me anything you want. It helps me so much to feel like I can offer something on this forum. I have not experienced that before.[/QUOTE]
Thanks so much for posting your experience Christie. It seems like you have had a real time of it with your CIDP. I am trying to learn as much as I can about all of the treatments for CIDP i.e. which drugs work best in what situations. I’m glad to read of your positive experience with Cellcept. Good luck getting pregnant!
Laurel