Cause of CIDP

Anonymous
June 9, 2010 at 8:34 pm

Hi Alice,
I’m also interested in what causes CIDP.

In my case, it became very evident about a week after having a flu shot (conventional, not H1N1). My doctor initially thought I had GBS, mainly due to the connection with the flu shot. However, when the problem came back a few months later, he realized it was actually CIDP. Tests confirmed this.

Now that I look back, I think the symptoms were gradually coming on for as long as a few years prior to the point at which they became evident. I had actually complained to my doctor about fatigue and lack of energy, but he couldn’t find anything, and I attributed it to creeping old age. But I also had other symptoms, which I didn’t recognize at the time: my balance was slowly deteriorating, and I was more ‘clumsy.’ In particular, I tripped a lot, which I now know is a typical symptom due to weak leg muscles that cause something called foot drop.

So, did the flu shot play a role? I dunno. I think maybe I was teetering on the edge of the CIDP cliff, and the flu shot pushed me over. But, to be honest, I have no way of knowing.

How many people have a correlation to a flu shot, or some other kind of viral infection?