Can I add one key thing?

June 8, 2010 at 7:29 pm

For me, IVIG has been mostly a great treatment. But key to that all has been the fact that the Numbness crawl up from my legs to my trunk was stopped dead and only recently has ‘begun’ again. After 6 years. The less Numb to the trunk? The better for sure!
For me, again, all else has been a bonus? I take each day as a gift, in that I can get up and out of bed on my own steam…tho slowly? And just get up and go! Being mobile is a treasure most humans take for granted! WE KNOW OTHERWISE!
The only good thing about the ‘numbness’? Is that when I fall? I feel things a lot differently from normal folks! That aspect is very hard to convey to ER docs & nurses? No matter how you try? Blank faces! I truly hate those blank faces…
Keep up the fight – it IS a fight, no doubt about it. Only YOU and your strength of spirit can determine some succesful outcome. It’s not easy, but it can be done with enough determination and ‘gumption’.
Hugs and hope and soon!