September 20, 2008 at 4:56 pm

Thank you for sharing your story. I have cidp. Back in June I had gotten very sick with what I thought was the flu. It was the worst I’d ever had and I could hold nothing down or in for days. I finally called my dr b/c I got to the point that I couldnt lift my head off the couch, literally. I felt almost like I was dying. Very strange feeling and hard to describe. I think having cidp sometimes makes even minor illness alot worse. I’m learning the hard way.

I was very dehydrated and it took many many attempts to even start an IV. The day I went to the ER, I had started having bad pain in my ovary area and I thought I had the flu and a cyst or something. They admitted me into the hospital…did a slew of tests including upper GI and a colonoscopy. Thank goodness they knocked me out for that….but found that I had C-DIFF.
I was hospitilized for an entire week . Nobody asked twice about the CIDP…they rarely do…they dont know what it is.

They said I likely got mine from taking antibiotics recently b/c of bronchitis. I had no idea what it was and three days after being in the hospital, suddenly, the nurses were gowning up and wearing gloves and started to come into my room a whole lot less. It was like I had a horrible plaque or something.

Having c-diff, I was very very sick….now every time I have an issue I get worried that it’s come back. Evidentally, re-infection is pretty high risk.
I have alot of stomach probs as it is….I dont feel good about 75 per cent of the time. They wanted me to bring a sample in. I declined that offer. I’ll know if it’s back I think. I’m not going to run a sample to them every time I have an issue.

I was told to also eat yogurt with the antibiotics they gave me for the c-diff to prevent yeast infections. It’s awful that our meds to make us better can sometimes make us so much worse.

again, Thank you for sharing your story…I hope your husband never has to go thru that again.

well wishes,
Stacey[/QUOTE] I thank you for your story also. After reading about you c-diff experience I see my husbands might return. We are not for sure it is completely gone.He just finished the medicine for that last week. I know we were suppose to go to our sons house for his birthday and he had to cancel because he was having trouble again this morning. It was just not as bad as it was in the beginning. If you do not mind me asking how long did it take for you to get over it. He took the vancomycin for 30 days. He did the pill form because he was scared to do anymore infusions. Thanks