burning sensation

Anonymous
December 20, 2006 at 5:21 pm

Hi Gene – Thanks so much for research and information. I’ve been seeing alot on here about quinine. Is this an rx or over the counter. What symptoms does it relieve?

burning sensation

Anonymous
December 18, 2006 at 6:16 pm

Roxie thanks for the support. I think you’re right it’s our old friend or/enemy GBs. You and I both were attacled six years ago. Does it seem to you that your symptoms have worsened in the last few years compared to the initial recovery when the total paralyisis went out. I seemed to have more energy back then, but as you say, I agree I never have had much energy past 2 pm an I don’t know how old you are, but I’m 59, and the older I get the worse I am and the less energy I have. It could be worse, and I’m grateful for what I have. But this burning sensation in the face is totally annoying. I’m sorry that you are experiencing the same thing, but I too am glad to know I’m not crazy. This is a crazy experience and most of those pop ups are related to the old GBS’er. I saw a man on the news, I live in CA, the other day and he was taling about his GBS and what he was stricken with and how his life has been devastated ever since. Anyway the program was about bacteria and food and he felt he got GBS as a result of eating chicken that wasn’t thoroughly cooked. Who knows, nobody really knows where it comes from. I thought mine was from the Swine flu shot – the one and only flu shot I’ve ever had and that was in 1977 and laid dormant until 2001. Still not sure and neither is anyone else. Now I get the slightest stressed or some infection and I feel taken down. I try to keep on keepin’ on. Take care.

burning sensation

Anonymous
December 18, 2006 at 4:36 pm

Hi Gene – it’s good to here from you thanks for replying. I’m not good at figuring this system out. I don’t take neurontin or any drugs other than an occasional valium when stressed out and symptoms are happening. I live in southern california and was in Loma Linda hospital for six weeks after original onset. That is where the neuro is. Rest and de -stress seems to help as this seems to happen when tired or emotional —which happen alot lately. I hope you are doing well – God Bless – Bunny