Brain fuzziness…

I don’t care what any doctor says, I firmly believe that CIDP causes many of us to have what most of us here refer to as “brain fog.” I am 9 years out now (a very severe case) & the only med I am taking for CIDP is 1800 mg a day of neurontin, also a small dose of Zocor for cholesterol. Ever since I came down with CIDP I have been forgetting the names of simple objects, forgetting where I was going when conversing, sometimes even halfway through a sentence I can’t remember the rest, etc. I was 48 when I got this crap & was teaching English & math; now I can’t even remeber how to do most of the math I was teaching. My 86 year old mom’s memory is much better than mine…I believe it is the CIDP, & I don’t get any IVIG infusions or other treatments (had cytoxan back in 2003 to arrest the progression of the illness, it worked.) I wish doctors would listen to us more…