When I took Nate to get fitted for his AFO, his ortho took x rays of his legs and hips.
He told us that Nate’s bones look what he called “washed out”.
He says that means the bones are not looking normal anymore.
He didn’t say Osteoporosis per say though.
He said that after Nate was walking more, he hopes the bones would get better.
Trudy, natesmom

Robin, I too am post GBS – May 2005. I also had perfect bone density before GBS, and now, although not as severe as yours, I have osteoporosis, I was completely paralyzed for 7 months; in the hospital for 10 months. I attributed the loose of bone density to not being able to bear weight for 1 1/2 yrs. I had IVIG and Plasmapherises (both 2 rounds). Now I take 1800 calcium daily and injectable Bonvia (lasts 3 months).

This year I have fallen quite a bit and have broken both feet (left foot 3 times) and currently I’m recovering from a broken leg. I tell you this to stress the importance of using whatever adaptive equipment will keep you safe. I wear AFO’s and use a walker and wheelchair.

A bit of encouraging news – xrays of my feet/ankles show bone important! Take your calcium and do as much exercise/walking as possible!

Best wishes,

Vicki