June 22, 2006 at 8:22 am

🙂 Be sure you talk to your uncle. He probably can hear you. You need to offer him encouragement and tell him he is acutely ill and WILL recover. He needs to have faith. Make sure he gets ivig. I did not get it and am still very angry about this. He is lucky he was diagnosed correctly. I was not and I was in a famous Boston hospital at the time. Just goes to show you the neurologist is very important. I had an incompetent one at first.
Follow everyone else’s advice. The GBS Society saved my life.[QUOTE=crystaly01]It seems that everyone’s case is different.

My uncle is a new victim of GBS. First night (Monday), he had diarrhea. Next morning, he went to the hospital because half of his body was numb, and he felt pain in the neck. The next day, he could not stand and fell. Soon that same day, he could not lift anything with his hand. The day after, he could not move at all and could not breath on his own and went to ICU and got very weak. Last night (Saturday), they put all kinds of tubes in his body. Today, he was out of conscious most of the time. We don’t know what to do.

I want to know everyone’s case and how much time it took each stage to change. Everyone is so worried right now. And we don’t know if my uncle is in the weakest time period now, or if it’s even “just the beginning”… Please help us by posting what you know. Thank you.[/QUOTE]