I really hate this illness, hard enough to deal with it at my age. But when I hear of a 6 year old having to go through all of it, it really makes me angry! Sending prayers your way that this treatment allows him to get back to walking again without the walker. Also that soon this illness would go into remission for him.
I agree with you 100% Alice, well said! Why should we have to “settle” for a lesser quality of life if there is another option available? When I underwent my cytoxan protocol back in 2003, only 4 others between the Mayo Clinic & the U of MN had previously undergone this procedure. Essentially, chemo was given in extremely high doses to me for 5 days at the U of MN, & then once a month for 8 more months; or until my immune system was basically wiped out. Looking back, it is a miracle that I didn’t get sick at all during this time. My son, who works at our local clinic, was living with us at the time…
But IVIG did not work for me, nor did PE or immunosuppressants. Solumedrol only kept me out of the nursing home, but still unable to walk or use my hands. At least now I can walk & lead a fairly normal life. But I hope you make a complete recovery. I guess I had too much axonal damage for that, but I am still happy with my results. The best part is not having needed any treatments at all for 5 years now. Best of luck to you!
It’s very wonderful to have fulfilled the wish, isn’t it? Though you informed me earlier about surprise gift (of trip to Greece) from your hubby, probably I thought you do not want to disclose it now. But since you have opened it on forum, I wish you the best of health for your ensuing holidays in Greece. 🙂