September 21, 2009 at 9:53 am

Yes, I think I can say I’ve been through this. About four years ago I was told that I also have Charcot Marie Tooth; CMT; as well as CIDP. Neurologist #8 just took one look at my feet and told me I have CMT. Now, how is it that 7 other neurologists never diagnosed the CMT, didn’t see it, missed it, doesn’t make sense to me. And how am I supposed to sort through the symptoms of CMT as opposed to CIDP and say yes I have CMT.

I decided to listen to my gut feelings, my instincts, which are excellent and stay with just the diagnosis of CIDP, but I keep a maybe for CMT in the back of my mind.


September 7, 2006 at 10:16 pm


My son is 22 months old and has GBS. He has been in the hospital for two weeks. He was on the respirator for 4 days. He was better and then he got worse when the doctors removed the breathing tub. Ege will get better, there will be a long road ahead of him. Prayer is the best form of medicine and I will add him to my list. I wish him a speedy recovery and know that GBS can be overcome. Best wishes Paul