Yes, I think I can say I’ve been through this. About four years ago I was told that I also have Charcot Marie Tooth; CMT; as well as CIDP. Neurologist #8 just took one look at my feet and told me I have CMT. Now, how is it that 7 other neurologists never diagnosed the CMT, didn’t see it, missed it, doesn’t make sense to me. And how am I supposed to sort through the symptoms of CMT as opposed to CIDP and say yes I have CMT.
I decided to listen to my gut feelings, my instincts, which are excellent and stay with just the diagnosis of CIDP, but I keep a maybe for CMT in the back of my mind.
My son is 22 months old and has GBS. He has been in the hospital for two weeks. He was on the respirator for 4 days. He was better and then he got worse when the doctors removed the breathing tub. Ege will get better, there will be a long road ahead of him. Prayer is the best form of medicine and I will add him to my list. I wish him a speedy recovery and know that GBS can be overcome. Best wishes Paul