It is interesting to me to learn that many people that have CIDP are complaining of back pain.
I thought I was alone but it seems that others suffer back pain as well.
Never heard of the new pain med I’ll have to ask doctor next time I see him to see if it approved in Canada.
How long has your son been really tired and had back pain? Has he had fever or other signs of an infection? Back pain is unusual in children and it and fatigue makes one think about a kidney/bladder infection especially if there is fever. Sometimes you can tell that this is the problem because of previous urinary tract infections or because of a smelly or cloudy urine. Viruses can make someone really tired, but usually do not cause back pain. The point I want to make is to keep pushing for answers if the back pain is interfering with play/daily activities or if the weight loss is more than 3-4 pounds or if this has been going on for more than 4-5 days.
There are rare cases of two people having GBS in the same family usually not parent/child. It is stated that your child should not have any higher risk of GBS than any other person even though you had it–so I hope this reassures you that this is not that. GBS typically soon after onset causes trouble to walk and to move the feet at any age. There can be numbness or tingling, but a four year should be able to tell you if his feet feel funny and you should be able to see stumbling. I would look for other reasons for him to be feeling bad.
WithHope for a cure of these diseases