[QUOTE=Comfortably numb]Hello friends….. Happy fathers day to all the dads out there.
My neuro just called with the results of my latest bloodwork. She explained that my B-12 level was low…300…
My understanding is the normal range is 200–1100.
She thinks that this can certainly contribute to the symptoms I have with a chronic neuropathy ( CIDP ).
I will see my primary care Dr. this week to explore treatment to boost my
B-12 levels. I take a multi-vitamin, but apparently this is not enough.
Has anyone here experienced a reduced B-12 level ?
What symptoms did you have, and how was the vitamin level boosted.
Did the low B-12 make the symptoms of GBS/CIDP worse ?
As always, thanks for any advice offered. Barry[/QUOTE]
I take 5000 mg B12 several times a day I have ALS with Severe Bulbar palsy
I get it at the health food store The tablet taste fruity and melts under your tongue .. without it I can barely get out of bed . I was looking for Ivig treatments ….. they might hopefully help me
At my very first visit at a neurologist’s, he found that I suffered from poly neuropathy, and told me that the three most common causes for this condition were long term alcoholism, diabetes and B-12 deficiency. The two first reasons we could rule out there and then, but since he had to test me for B-12, he ordered me to take five shots of B-12 just to be on the safe side before the test results came through. The shots made no difference, as my B-12 level was absolutely normal.
When I later was dx’ed CIDP, and then later still PDN, there has been no talk of any supplementary B-12, because CIDP has nothing to do with B-12 deficiency.
Of course if your B-12 level has been extremely low over a long period of time, while you are suffering from CIDP at the same time, the deficiency probably will make your symptoms worse. But in the end CIDP and B-12 deficiency are two different conditions altogether.