I saw one of my neuorologists yesterday Friday, Sept. 9 following yet another set of emg/ncv nerve & muscle tests. In fact, he took over the testing from the other two doctors.
Me: What did the tests show?
Neuro: You’ve got atypical CIDP.
Me: What does that mean?
Neuro: It means you do not have the normal pattern of swollen, inflammed nerves with both muscle and sensory involvement causing problems. Yours is not symmetrical. Yours could be called multifocal CIDP.
Me: What does multifocal mean?
Neuro: In your case, it means that different muscle groups are involved here and there. The involvement is not equal on both sides and it is not equal in the same muscle groups.
I thought this 1999 GBS-CIDP newsletter report was appropriate for this thread.