Another possibility that can cause arthritis and neuropathy with EMG abnormalities in the very young child is dermatomyositis. One easy test that should be done are muscle enzymes–especially a CK (used to be called CPK) blood test. From the book I was reading yesterday, children with dermatomyositis have a lot of difficulty getting up off the floor and sometimes holding their arms up.
I probably also should have said that my neurologist sees children as well and he is very well known neuromuscular specialist–John Kincaid. He is excellent and he and Dr Smith work together, but she is the new Pediatric specialist in neuromuscular problems.
Many of the pharmacies have special pricing on generic medication–it is not all medications that are generic, but it is worth checking around to see if what you take is on any of the lists. I have seen advertisements for Walgreens, Krogers, Walmart, etc in which for generic medications one can pay as little as 4-10 dollars a month. I think one of these, you have to sign up to a pharmacy program, but it would still potentially save most of us lots of money because of how expensive some of these medicines are. Anyone using this or with details, please chime in.
WithHope for a cure of these diseases