Those of you that have lived with this for awhile–Do you think that the fatigue gets better over time or do you just think that one eventually learns to adjust to the new limitations in life? Does the fatiguability/fatigue ever settle down or do people just give up hope for the previous normal and accept a new and much smaller definition of “normal”???
Can you guys stand another question from a newbe? When is it appropriate to start ot and pt?
I’m in week 3 and have had no treatment as of yet. Dr. ordered ot and pt to start now but after reading some of these posts, I see that pt should be done carefully with rest periods in between sessions. I have the waddling gait and intermittent pain in legs…muscle cramping / charley horse-type pain.
Thanking you ahead of time for answers.
I’m going from numbness / tingling in limbs to intermittent muscle cramping and soreness, even in my sides (rib cage area). Sometimes sharp, shooting pains. Is this a sign of normal changes in gbs? Don’t know if I’m in week 2 or 3 of gbs. Also, how might this affect emg and ncv tests I’ll have tomorrow a.m.? Dawn, I found your posts to me…can’t thank you enough!
Merry Christmas to all!
I hope no one minds if I ask a related (?) question about blood — my Neurologist is concerned about my low white cell counts while I am on CellCept – I have lab work once a week and my counts bounce from 5.9 to 3.2 usually staying around 4.1 or 4.2 — My infusion doctor, a hemitologist/oncologist, assures me that he is not impressed by this level and I shouldn’t be concerned, however I am not at a full dose (2,000 mg?) of CellCept because of my Neuro’s concern. I was switched from Imuran to CellCept in July – introduced at 1000 mg and following week up to 2,000 mg. put back to 1,000 mg after 2 weeks. Health has remained fine, no colds or flu. Any one on CellCept and getting theraputic results at 1,000 mg?