Another Newbie

August 9, 2006 at 11:08 pm

Hello Chaya,
Welcome to your new family. We understand because we feel what you feel. Many of us do not even know what caused CIDP, it is just something that happened. I was diagnosed in 1998 and I still don’t have reflex’s, but I’m so used to that now I wonder why I need them. Exercise is good because our muscles are okay and need to be used, but it’s very very important that you don’t overdo and that you listen to your fatigue level. Some of us need to take naps, so if you need to do that, it’s normal for us. With CIDP, it’s the nerves that are damaged and they can’t tell the muscles what to do. I am recovering now, I did very well with IVIG’s and never had any side effects. Whether or not to take steriods will have to be your decision and you’ll have to reach it by going by your doctor’s advice.