Another Lowcountry Lady
Glad you have a diagnosis-this seems to be the biggest problem. I went on the medical merry-go-round for many wrong diagnoses.For too long. If I’d listened to the doctors I’d had 2 major back operations with rods/screws or be sitting at home wondering why my Fibromyalgia put me in a wheelchair.
Somehow luck turned for me and I went to a Charlotte, NC neurologist to see if back surgery would be useful. He was an excellent neurologist and also a neuromuscular specialist. Just opened a clinic for CIDP/IVIG infusions.
I will send you a private message with the information with “CIDP” in the header.
The summers at Edisto Island at the cottage “Gone with the Wind”-how low country can ya get””