Another Billy Update!: "The Emotional Roller Coaster"

November 17, 2006 at 12:01 am

Hello Dear Family!

I am sorry that I haven’t been able to keep in touch with you but, this past month and a half has been a ride for life.
Everything that could happen did. Even Coding!
Problem with the trech being the biggest problem of all.
Billy’s only airwave is the trech. The day the trech was removed Billy coded and I could do nothing to help him. Within an hour he turned Blue and was on his way out. Every nurse and respiratory person on the floor was in the room trying to bring him back. Even the respiratory team from Life Flight came in to help.
I was trying to pump air into his mouth with the abulatory bag and screaming all at the same time. Billy was looking to me for help and I couldn’t do anything. A tech took me by the arm and led me out of the room while the nurses worked frantically to bring him back. That was when they discoverd that without the trech he was not getting any oxygen.
There is a blockage somewhere above the treach and no one has been able to figure out what is going on as of yet. One ENT Doc has gone in twice and removed a couple of pollups but couldn’t seem to find the problem.
One Doc had an Idea as to what the problem might be but was booted out from day one.
You know the game I’m sure.
Alot of Racers advise and words of warning were taken when all of this came about.
At this point in the game I was well into working with the nurses instead of trying to find fault. I learned from them and they from me.
I worked closely with Doctors and the P.T. team to make sure Billy’s every need was met.
We all worked together and got Billy up to the point of being discharged from the Hosp.
That one we have his nuerolgy Doc to thank for. He fought for us all the way. During his venture he found that someone was playing games and didn’t like the hand that had been dealt to Billy. He put a stop to it and called in re inforcements. At the same time he realized that I had known all along there was a game being played. I had kept my mouth shut because I knew how dirty that game could get and I wasn’t going to see Billy go through anymore then he had.
Billy is now at West Florida Rehab, where he has just gone through his first week of real P.T.. and was evaluated as to how much longer the staff thought he might be there.
With just the progress that he has made this week we are looking at 5 to 7 more weeks before he comes home.
With Gods help this will come about.
During this time the new ENT DOC is going to go in and see if he can figure out what is going on so that way we have a heads up when the trech does come out.
Billy’s P.T. Doc wants to wait until he is stronger before any surgery is preformed. He says he has been through enough. We need to get him stronger and concentrate on movement.
Billy is improving everyday and we both are praying everyday.
Well I guess I had best log off for now. I just wanted to let you all know that your prayers for us are being answered everyday and please know that you all are in our prayers day and night.
God Bless You All!…………………………………….PIPER