June 18, 2009 at 12:59 pm

Hello my friend,
Here’s a flower for you just to let you know I’m thinking of you. If the flower disappears I’ll just have to figure out what I did wrong.



September 27, 2007 at 11:58 pm

I agree with Gene, I think it is still to early to tell how much recovery she will make. Many adults with GBS take two years or more before they quit getting better. Nerves can be so strange in the way they are able to rejuvenate. Also, she has the youth factor on her side. I think she is doing extremely well, so independent; I know many “healthy” 5 year olds who do not do all of that for themselves!

I know how you worry for the future… I raised a son who is now 26 & was paralyzed from the waist down from birth due to spina bifida. He still walks with crutches & leg AFOs, but uses a wheelchair to get around for longer distances. It did break our heart when he was born, to have one son able to do everything & one who never would. But he is happy & chose a profession where he could be an athlete vicariously (sports writing.) He has told me that he never missed what he could not do, as he never knew what it was like to ever do those things. I can now understand what he meant, as after 5 years I can’t remember what it was like to run or jump either. Strange how the mind works & forgets…

I wish your daughter a wonderful recovery, don’t give up hope after only one year!Pam