also going threw it

Anonymous
August 20, 2008 at 9:09 pm

Hi,

Just some words of encouragement your brother is not the worse case ever because the symptoms and story you just told is exactly the story I am living right now. My mother was diagnosed with GBS on the 13th of July. On Monday the 8th she had tingling of feet and hands and we took her to the ER Tues. the 9th and she was not hardly able to stand by that evening they admitted her to the ICU unable to breath well and continuing to grow weaker. They were baffled by her symptoms so they transferred her on Fri the 12 to a bigger facility where they diag. her with GBS. She was intubated and was on the brink of not making it for the first couple of weeks very unstable vitals. She is now stable but she is unable to move anything below her shoulders she feels nothing but pressure and a lot of pain in her hands and feet and mostly her legs. She now has a trach. She also did not sleep and is still not sleeping well at night. She did suffer a lot of confusion also exspecially when she did not sleep. She was very constipated at first but now she is having the opposite problem. She has good days on the vent and bad days where she needs much more support than the day before. She did not get a pneumonia but she did have a lot of fluid on her lungs but not in them. She has been in the ICU the whole 6 weeks but now that she is more stable they are going to move her to an Intermediate floor where she can still be on the vent but needs a little less one on one time. She has been so brave but boy what a challenge for her and the family. I cant imagine having a young father going threw all this. My mom is almost 66 and my father is retired so it makes it a little easier that way to deal with. I hope your sister in law is doing ok with expecting a baby soon. I hope he continues to improve and is able to be home for that baby. The physicians told us that progress would be slow but boy I had no idea what slow really meant untill we were faced with this. Good luck and I hope your brother does well.

also going threw it

Anonymous
August 20, 2008 at 8:44 pm

Hi,

Just some words of encouragement your brother is not the worse case ever because the symptoms and story you just told is exactly the story I am living right now. My mother was diagnosed with GBS on the 13th of July. On Monday the 8th she had tingling of feet and hands and we took her to the ER Tues. the 9th and she was not hardly able to stand by that evening they admitted her to the ICU unable to breath well and continuing to grow weaker. They were baffled by her symptoms so they transferred her on Fri the 12 to a bigger facility where they diag. her with GBS. She was intubated and was on the brink of not making it for the first couple of weeks very unstable vitals. She is now stable but she is unable to move anything below her shoulders she feels nothing but pressure and a lot of pain in her hands and feet and mostly her legs. She now has a trach. She also did not sleep and is still not sleeping well at night. She did suffer a lot of confusion also exspecially when she did not sleep. She was very constipated at first but now she is having the opposite problem. She has good days on the vent and bad days where she needs much more support than the day before. She did not get a pneumonia but she did have a lot of fluid on her lungs but not in them. She has been in the ICU the whole 6 weeks but now that she is more stable they are going to move her to an Intermediate floor where she can still be on the vent but needs a little less one on one time. She has been so brave but boy what a challenge for her and the family. I cant imagine having a young father going threw all this. My mom is almost 66 and my father is retired so it makes it a little easier that way to deal with. I hope your sister in law is doing ok with expecting a baby soon. I hope he continues to improve and is able to be home for that baby. The physicians told us that progress would be slow but boy I had no idea what slow really meant untill we were faced with this. Good luck and I hope your brother does well.