I don’t know if I can help you enough because I was retired from my job before CIDP started, so I didn’t have to struggle to try to make it through a day’s work in order to support myself, BUT, I am a severe case being in a wheelchair and I live alone. I manage because I’ve hired a home care agency to help me with things I cannot do. I’m able to do my own cooking, cleaning, hygiene care, etc, so I am capable of living alone. And for some things I have to hire a handyman on an as needed basis. Just to give you an example of how well I can do things, I recently made a move from New York to Florida and I did my own packing and cleaned my former home by myself. My brother transported my belongings and I flew to Florida alone.
Don’t be afraid to look for another doctor until you find one who will listen and work with you. I went through five doctors before I found #6 who was my keeper. He’d listen and make things easy for me.