Agree about AFO. However, Nothing is normal.

May 19, 2010 at 4:27 pm

[QUOTE=Gary Erwin]Is that another symptom I can look forward too….[/QUOTE]
Hello Gary,

Regardless of if it is this website, or any other internet search, you could easily scare the beeejabbers out of yourself. Focusing on this phrase helps me- “The course of CIDP varies widely among individuals.” It is from “NINDS Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Information Page.” The link is here:

NINDS is National Institute of Neurological Disorders and Stroke

I agree with the recommendation to have an AFO. I’ve worn one on my left foot since 1979, or so. Ultimately, I needed one on the right foot in 2008. So, you see, nobody’s progress, and therefore treatment is “normal.” For those of you, like myself, who decide you can still walk w/o an AFO please consider the long term potential damage to your joints, ligaments and tendons of continuing to walk with an abnormal gait.

Yes, you have to pay attention to the functions that are becoming ever so slowly weaker. However, it doesn’t do me any good to do anything but have fun everyday without regard to the long list of things I can no longer do.