adnan
Dear Jim, Goodney ,Laural and others
I am really thankful to you for your replies.Symptoms are creeping slowly and weakness in hands and legs is crippling but the parasthesias are slightly better although fingers are numb.I am a student on scholarship here in Australia so my Health Insurance is limited and procedure to get approval for IVIGs is cumbersome thats why doc started azathioprene. Secondly , my neurologist wants to start with basics and will then proceed to IVIGs although in Australia they somehow prefer Plasmapheresis to IVIGs.
Anyhow i am glad that i am also a part of this family which is indeed responsive and caring.
Regards
Adnan
adnan
Hi Hedley
I started having pins and needles, numbness and severe pain in my both hands 3 months back. Initially i never noticed any major weakness and my GP told me that this is carpel tunnel syndrome( a nerve compression) and send me to neurologist for nerve conduction studies. There i was diagnosed with CIDP and within a week same numbness and tingling started in my both feet which is still there and if weather is cold it is aggravated.
Now on immunosuppressants . Tingling in hands is decreased but at the cost of complete numbness in fingertips specially. Got my fingers burnt when i picked up a hot plate from oven a few days back. So you have to adjust to it and i am still trying to.its extremely difficult for me to touch even a cold object or take anything out of freezer– the tingling strikes back with maximum fury.
My family is full of doctors and my sis in law who is intensivist even asked me to discuss about gabapentin with my neurologist but i am too afraid of its side effects.
So still trying to cope with numbness and sleepy hands which is now becoming a daily routine. I think we are in same boats.
Adnan
adnan
Hi all
I am 32 y old ( trained as a doctor) and just a week ago diagnosed with CIDP. I am on Azathioprine which has its own set of side effects. Although it may not be mentioned in medical text books but i am experiencing these symptoms of tongue locking or as if someone is stopping you forcefully to speak or sometimes it requires some extra effort to utter some words .
I got facial nerve palsy thrice during last 6 years and now my nerologist is attributing those to CIDP which was considered by doctors as Bell’s palsy and treated thrice by high dose steroids.
Whether there is any report of these symptoms in medical literature or not, these do happen. And at times i become frightened to think whether any of my cranial nerves are getting involved or its an early symptom of Pseudobulbar palsy which is a known manifestation of CIDP. If any one of my friends have some suggestion or any OTC remedy ,kindly reply.
Adnan
a frustrated freshman