January 3, 2007 at 1:49 am

I know this must be scary to you. I don’t have GB, but my husband does and I know how frustrating it is for him. It’s especially frustrating because he often gets accused of faking it. I hope that hasn’t happened to you. Like others on the forum have mentioned I think from knowing what my husband has gone through it’s important to stay active, yet not over do it. It’s easy to over do it if you can’t feel your digits. My guess is a good rule of thumb (no pun intended) is to make sure you exercise everyday. If you can’t move your finger or toes by themselves, then push them against something (like the couch or rug to flex them, or have a friend or family member massage them. but I repeat don’t push them too far, because the fact that your feeling is dulled makes it easy to cause injury without realizing it. Please keep us informed about your progress.