A sad update

October 11, 2008 at 5:01 pm

I wanted to thank everyone for their information and support when I wrote a few weeks ago about my sister. Unfortunately in addition to CIDP she had hemochromatosis which is too much iron in her blood. While she/we had been told she had developed liver problems I don’t know that anyone expected it to end her life. The focus had been on CIDP treatment and not her liver. It must have been developing for a long time but she passed away on Sept 21. Please if you have any other problems along with CIDP see that they are addressed as well and not postponed until you are feeling better, able to walk or for some other reason. I miss her every day and wonder if we had asked some question or saw another doctor she would still be here. I wish the best to you all.