a good book

August 31, 2007 at 9:44 am

Maria, there is a section about Rehab and therapy in a book called Guillain-Barre Syndrome by Gareth Parry and Joel Steinberg, MD. It is written for patients/families but has a lot of good information. It is available on Amazon if your library doesn’t have it.
It also includes references/other reading that might be helpful.

My daughter’s PT was very good. She had worked with GBS adult patients. She did not push; when we increased exercises one day early on, resulting in a set back, she knew right away to back off and forbade us from doing more. She gave my daugther 2 sets of exercises to do at home, one for days when she felt stronger and one for days when the fatigue/etc made exercise very hard.

Aquatic Therapy was also SO helpful. Good luck and I am glad you are trying to find out more!