2nd Opinion dx CIDP

May 27, 2008 at 10:18 pm

May 16 we sought a neuro in Iowa City and after a nerve conduction test, Lauren was dx with CIDP and will have maint. dose (1gm/1Kg) every three weeks for on Fridays for 6 hours. Her first dose was May 23 and today she was jumping, walking on tip toes and going up and down the stairs with ease. Is is amazing! The only down fall is our family doctor is not hip on the idea of having the dose via Home Health Nurses. He is worried about reactions/side effects and being 30 minutes from the hospital. How does it work for any of your children??