17 yr old with cidp

I am the mom of a 17 year old….male, junior in high school. He was diagnosed in Dec 2002 with cidp. Most of his problems deal with loss of sensation in feet, legs, and fingertips. No, he has no reflexes, but does walk independently, attends school and is active in drama, student gvt. He used to play soccer, but that is out for now. We actually have some medical appointments coming up as he feels he is worsening and ivig does not help. He is taking 45 mg. prednisone eod.

What is your situation?