Reply To: Lower leg and feet muscle tightness

Hello!  I’m new to the forum so just seeing these older messages now.  I’ve had CIPD for about 4 years and had been doing well, but just started with some new symptoms which is why I started looking for others who may have experienced something similar. My main symptoms initially were weakness in my arms/hands and legs.  I started ivig infusions and improved. I have infusions every 3 weeks and hadn’t been experiencing any symptoms.  Then this last summer in June 2025, I started having the calf tightness in both legs like you mentioned. Every time I get up from sitting, I feel the tightness.  I also have tingling, stinging and movement sensations in my calves/lower legs when I’m sitting.

I saw my neurologist who had additional tests done (EMG, MRI’s, sweat test, etc.) but didn’t find anything to show the CIDP worsened or anything else wrong with me.  They just think it’s nerve irritation and said I should try taking Gabapentin. I’m a bit nervous to take that as I know some people have side effects.

Has anything changed/improved with your calf tightness since this initial post?  Anything that has helped you?  Or any other information you can share that might help?