Reply To: Anti-MAG fatigue for newly diagnosed.

Oh Sunny, I am so sorry to hear all this.  I was only asking about Rituximab if I’d  need it at some point in the future and what other’s experiences are with it treating Anti-MAG.  That’s why I had the original post.  As it turns out though, I may not have Anti-MAG after all.  My BTU levels were just over 1,000 which is borderline.  Mayo Clinic says I don’t have Anti-MAG.  Turns out I have something called Lambert-Eaton Myasthenic Syndrome (LEMS) instead and am receiving treatment for it.  There’s a lot of overlap with Anti-MAG symptoms and I have a lot of numbness, tingling, etc.

While there isn’t a specific drug for Anti-MAG there are drugs that can help with your symptoms including gabapentin, duloxetine, and others.  Ask you doctor if he/she would consider them for your symptoms.

I wish you the best of luck, karen