Reply To: Post-GBS Tingling

I’m eight years post-GBS and have various residual affects from GBS.

Years one and two were mainly fatigue, temperature senstivity and some nerve pain in the legs. By 2019 I developed faciculations in a calve muscle which have progressed to the entire body.

I have received a full panel of blood and neurological testing for potential genetical neurological diseases. The results of all the tests have come back negative. Faciculations have not progressed further to indicate or suggest a neurological disease like ALS so this has been ruled out.

I have seen (3) Neurologists which after looking at previous tests and current physical abilities have concluded I have GBS residuals which now include, (BFS) Benign Fasiculation Syndrome. I am told it may or maynot go away but I am truly hoping it does.

I take 1/2 tablet of Clonazepam at night to help me sleep because the muscle spasms or fasiculation can keep me awake. During the day when I am busy working and I am not focused on my fasiculation I know they are there and they do create periods of fatigue and muscle spasm but when I take any breaks during the day, they are clearly visable in the arms and legs.

I am not sure if anyone has experienced these kind of nerve issues but I share in any frustrations any of you may have with other residuals from GBS that you maybe struggling with.