Reply To: Rituximab

Hello.  I received Rituximab twice.  Once for follicular lymphoma in 2013 and for CIDP in late 2016.  I tolerated it very well with no issues.  I believe it really helped me get back to walking again as I was 80% paralyzed and in sad shape with CIDP.  I also had 3-1/2 years IVIG post for maintenance.  I have been off IVIG for 3 years or so now.  I still have polyneuropathy in my lower legs, feet, lower arms, hands and also left side of my face/eyes and tongue,   When I received IVIG I also needed 50mg IV Benadryl and steroids due to a skin eruption.   The Benadryl was for the infusions themself as I would break out in a rash.  The steroids for after as I would get skin sores, so it sound like we have the same issue.  When receiving the infusions I could only tolerate a very slow rate or it would burn in my veins really bad and get very bad headaches.  I hope this helps somewhat.  We are all different and reading through the forums here a person can get a good feel of what others have been through and overall treatments reactions etc.  I wish you the best of luck, John