Reply To: CIDP Misdiagnosis

Hi, gpquinn.

I had to go to 4 doctors before I found one who properly diagnosed me with CIDP. I didn’t bother telling any of my previous doctors after I’d switched to new ones. However, I think that most doctors would have a pretty thick skin if you did tell them that you made a switch.

As for the possible misdiagnosis, I wouldn’t even mention that to your previous doctor until you have received a conclusive diagnosis. At that point, it can become a useful learning experience for that doctor.

I suspect that when most people change doctors (for whatever reason…misdiagnosis, confidence, personality), they simply leave without telling the previous doctor the reason(s).

Good luck with your new doctor. Hopefully, he can figure out what’s going on with you. Then you’ll finally be on the road to what will hopefully be a full recovery!