Reply To: Lost

Hello Earlyduck,

Have you had any more tests done, MRI, Lumbar Puncture, bloods to clarify whether you have CIDP or not? If so, you will most likely be put on IVIG, which most people find helps a lot.

I have just been diagnosed with CIDP a few weeks ago after my walking became very difficult, the right arm was also having difficulties with strengt, feeling like RSI, and experiencing numbness, tingling in the legs, stiffness after standing up , problems with balance and fatigue. I received the  IVIG loading dose, over three days in hospital, combined with IVMP, a strong Prednisone and have been feeling much better since then. Walking is almost normal, no more pain, swelling in foot has gone down, stairs are easier, Although I also side effects from both treatments: headache, high after the prednisone, blood pressure is up, heart rate is up.

I hope you have made progress with finding the cause of your feet pains and the neurologist has given you an effective treatment to help you dealing with this.

All the best,

Petra